Skip to content

Guidance and support in care funding

NHS not responding to your Continuing Healthcare correspondence?

Please note: This article was published prior to January 2024, and some information may be outdated.

Stack of postIf you’re challenging or chasing up a Continuing Healthcare assessment, and there’s a lack of response from the NHS, these 13 tips will help.

In July 2013 we published an article called Why is the NHS delaying my Continuing Care assessment?, and we looked at the timescales that should be adhered to by the NHS at each stage of the Continuing Healthcare assessment process.

The article also suggested that, although the NHS is stretched in resource, many of these assessment delays are likely to be for financial motives – to stop people accessing NHS care and care funding.

We’re returning to the subject of delays in today’s article – this time focusing on what to do when the NHS fails to respond to your correspondence about Continuing Healthcare funding.

We hear from many families who have written and/or called the NHS asking about a relative’s assessment – only to be met with a continual and resounding silence. It’s frustrating, to say the least.

If employees within a private company acted like this and failed to respond to their customers, they would most likely be reprimanded or sacked, and the company would be at risk of going out of business. Sadly, the culture in the NHS when it comes to care funding – and the attitude of many NHS employees within that process – often seems to be one of indifference towards the very people it exists to serve.

So what can you do if you’re struggling to get any response to your correspondence about your relative’s Continuing Care assessment? Here are a few suggestions:

(It’s worth remembering here that there are individuals within the Continuing Healthcare system who are helpful, and who are working in a difficult environment. If you do have a good relationship with such a person, be careful not to damage it.)

  • Write to the NHS Continuing Healthcare Dept. – and if you fail to get a response, write again and again – every day if you have to.
  • Phone the NHS Continuing Healthcare Dept. and say you will keep calling until you receive a proper response. That response could simply be to update you about when they will be able to respond properly, but it’s better than nothing.
  • Copy your letters to the Chief Executive of the relevant local NHS.
  • Also, write a separate letter directly to the same Chief Executive highlighting the situation and stating your dissatisfaction – and copy your letter to the Continuing Healthcare Dept.
  • If there’s a Chief Operating Officer, do the same.
  • Copy your letters to the Head of Adult Services at the local authority.
  • If you have a good social worker contact, see if they can be instrumental in getting the NHS to respond to you. They work in partnership.
  • If the person you’re trying to get an answer from within the NHS consistently refuses to respond, find out who their manager is and write to them as well.
  • Write to the relevant regional NHS National Commissioning Board; contact NHS England for the number (although experience indicates that the switchboard at NHS England seems poorly informed about contact details for other areas of the NHS!).
  • Write to the local MP and let the Continuing Healthcare Dept. know you’ve done this.
  • Contact the Parliamentary and Health Service Ombudsman.
  • Contact the press.
  • And if you still don’t get a response from the NHS, you may want to send a letter from a solicitor to the Continuing Healthcare Dept. highlighting that the NHS Continuing Healthcare team is potentially acting illegally by trying to force your relative to use personal assets to pay for nursing care when the NHS has not carried out its duty to assess – and before it has even been established who is responsible for paying for care.

Are you finding it difficult to get a response to your correspondence with the NHS?

Share this article

2 Comments

2 responses to “NHS not responding to your Continuing Healthcare correspondence?”

  1. My nan was given chc funding in june 2012 after we delayed dishcarge from hospital until they would present her case at panel and we created a 10 page booklet highlighting her needs under each area. The nurses on the ward told us she wouldnt be eligible but we stood firm and it was taken to panel and she was awarded the funding. Since then she was assessed by the hospital as needing a chair and then by an independent assessor. She fell out of the one given by the local o/t and we were told she needed a rise and recliner but that they didnt privide them so we would need to purchase it. After looking on the chc website i found out that if you get chc funding they are required to provide for all your needs. Since then we have had an 8 month battle trying to get a response about funding for a chair. The district nurses sent the paperwork i.e. the assessments and the quote and we never hear anything back from the chc team. At present as we could not leave my nan without a chair we are hiring one a a cost of 75 pounds a month so in total it has now cost us 600 pounds for the last 8 months. We are now submitting a formal complaint to the local clinical comissioning group and making the mp aware as well as we are a patient family but our patients has all but run out with our dealings with the nhs.

    • Thanks for your comment, Sarah. Trying to get any decent reply from the NHS can be so frustrating, can’t it? I wish you well with your complaint and your claim.

Leave a Reply

Your email address will not be published. Required fields are marked *

By submitting this form, you agree to the data handling as stated in our Privacy Policy.